Jesy Nelson ‘terrified’ for baby twins operation but says ‘can’t wait to see their faces again’

JESY Nelson has revealed her baby twins are undergoing another operation tomorrow, admitting she is ‘terrified’ ahead of the procedure.

The singer’s daughters Ocean Jade and Story Monroe, suffer from Spinal Muscular Atrophy Type 1 – a rare and severe genetic muscle-wasting condition.

Taking to her Instagram page, Jesy revealed the babies were having their nasogastric (NG) tubes removed on Friday.

A nasogastric tube is a feeding tube passed which deliver nutrients, fluids, and medications when a baby struggles with swallowing.

Sharing a picture of Ocean and Story, Jesy said she ‘couldn’t wait’ to see their faces without any tubes, albeit a ‘terrifying’ procedure.

“Today is the last day of my baby girls having their ng tubes on their faces, as terrified as I am about them having their operation tomorrow I cannot wait to finally see their faces again and see their little dimples that are always hidden under these plasters.

“I’ve honestly forgotten what it feels like to cuddle them and not worry about pulling their tube out of their nose or plasters off their faces. It really is the littlest things we take for granted as parents,” wrote Jesy.

The twins are undergoing surgery to replace their nasal feeding tubes with direct stomach feeding tubes – because the nasal tubes cause severe trauma to their nose and throat when pulled out

The sweet picture showed the babies covered in matching blankets lying beside one another.

Jesy shares the twins with her ex partner Zion Foster.

She has been documenting their heartbreaking health battle since giving birth, and campaigning for more to be done to prevent SMA.

The operation comes after doctors warned Jesy the girls were not responding to treatment the way they had hoped during their most recent three-month review at St Ormond Street’s Children’s Hospital

Discussing what had happened, Jesy said: “Unfortunately, some of the numbers have gone down. We had a long discussion and there’s a possibility they may have to go back on treatment, which is just heartbreaking.

“I constantly battle between manifesting they’re going to defy the odds and trying to come to accept that that may not happen.

“It’s a really weird position to be in because you you think ‘well, if that doesn’t happen, am I just going to feel heartbroken for the rest of my life?’

“Then you worry, if I accept it, am I also manifesting that?”

She added: “I don’t ever want them to feel any less than or feel like it defines them. I really want them to know how special they are.

“I want this to be their little superpower.”